We finally received a call from a surgeon today. They have decided to take Gracie's information to a "Tumor Board" for review on Wednesday. What they are wanting to do is to do 6 rounds of chemo first followed by the surgery. Their reasoning for this is because she is predisposed for getting Wilms Tumors because of Beckwith Wiedemann Syndrome, so they want to make every effort to save as much of her left kidney as possible. The chances for children with BWS to get Wilms Tumors stays elevated until they are around 8.
I am very confused on how I feel about this. I have been told that the Oncologist at DC Childrens is one of the leading doctors regarding Wilm Tumors. I just have no idea what this will mean for Gracie and her hypoglycemia. Also will it really help and are we unneccesarily putting off this surgery. I really just need some time to let this all sink in.
For all that are wondering how Gracie is doing, Gracie is still a very active, funny, loving 3 year old. She still loves her kisses and cuddle time with mommy and daddy.
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