It look as though there will be chemo before surgery. My Mother in Law contacted a few of her contacts at CHKD and they all seem to agree with the docs at DC Childrens. I have also been in contact with a few other families that have been through this and they have all said that we are in great hands at DC Childrens. So, we are going to have faith in the doctors for now. The doctors will meet tomorrow and hopefully we will know when this all we begin by the end of the week. We know that they will want to begin Chemo as soon as possible.
I have been trying to think of ways to help Gracie when she begins Chemo and her hair starts falling out. I have thought of those really cute flowered crochet hats. I have browsed online at a few sites and they seem really cute. Anyone have any first hand experience with really good places to get them please send me an email.
My next concern with this whole process is how are we going to manage her hypoglycemia through chemo. I am going to be in constant contact with Dr. Link and hopefully we can come up with a good game plan.
I need to go to the store and get a really large notebook. I need to take really good notes on what the doctors are telling me. I haven't always been known for the best memory! I'm sure we will be flooded with info over the next week.
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Well, at least now you know more of the plan. Some kids won't lose their hair at all, but many do. I doubt it will bother her if those around her don't fuss too much. Go get her a cute little haircut before she starts, maybe something you wouldn't normally do just for the fun of it. Also, silly, you don't need a huge notebook, but I totally agree with you that you should write down everything. It's crazy how much information will be thrown at you at once by how many people who seem to know everything. Ask questions, write them down as they come up and don't be embarrassed or feel you are imposing. It's the Dr and staffs job to keep you informed. Stay strong and just know there are others out there rooting for Gracie and praying for her health once again (you know I am her biggest fan!) Love you guys!
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